Zhou Lin and I have been hanging out a LOT at the hospital these
days. Last week, she had surgery on her left hand to bring her
finger stumps down into position for grasping, so now she has pins in
her fingers to hold the tendons in place. She was virtually
immobilized for a few days after the surgery, since the IV apparatus
in her right arm made that arm virtually unusable, as well, but now
at least the IV is out and she is able to use her right arm
again. The doctors made the decision not to operate on her right
hand at this point, because she already uses it well and it's
questionable what she would be able to gain from surgery. As long as
she has one hand for grabbing things (like a walker or furniture as
she ambulates around) and one hand for more fine motor skills (like
writing, painting, and using chopsticks), she really will have a
remarkable range of function with those tiny hands.
The first week after the surgery was quite tough, since Zhou Lin was
stuck in bed all the time without the use of her hands. She was very
itchy and asked to be scratched frequently in different places. She
was unhappy not to be getting enough exercise, so she asked me to get
her a helium balloon that she could tie to her ankle and kick.
We've
also been taking turns reading to each other -- she's been reading
lots of stories to me in Chinese, and I read to her in English. (She
can even join me on a lot of the English words now.) Both of our
language skills definitely seem to be improving as we go through this
time together, and the nurses have been excitedly telling me about
the new things she is able to say to them in English from day to
day. (She's as observant as a hawk about her care, and will quickly
correct a nurse or me if we forget to do something, which is terrific.)
Zhou Lin's teachers have continued to come to visit her throughout
this post-op period, although some days she is too sick to study
much. Zhou Lin's mother sent some of her textbooks from China, and
her tutors are also preparing some lesson material on their own with
help from Chinese educational websites. Zhou Lin is still having her
weekly lessons in math, Chinese, science, social studies, and the
arts, and although her study time is much less than she would be
getting at school in China, at least she feels that she is not
falling completely behind while she is here.
The hardest part of hospital life for Zhou Lin is the food. She is
completely sick of microwaved hospital meals, so nice Chinese people
from the local community have been bringing in a wide variety of
foods for her, and I've been trying my hardest to stir-fry dishes
like her mother used to make (with little success, though). Zhou Lin
has very discriminating taste, and so getting enough calories into
her tiny body has been a challenge. The hospital discovered that
she's lost almost 10 pounds since she arrived in the US (some of that
being the weight of her amputated feet), so there has been a lot of
work done to try to procure foods she will eat. She is currently
only 62 pounds (too light for age 14), and we keep telling her that
her main job right now is to eat more protein and fiber, or she'll
never be able to build the muscle mass she'll need when she really
starts getting up and walking. The only American food she really
likes is pizza (the real kind from a pizzeria, not the microwave
kind), although she unfortunately discovered after the pizza party in
the hospital playroom last night that the first cup of Coca-Cola she
managed to drink kept her up until almost 2:00am. I suppose it's
back to her favorite beverage -- hot water -- along with more
obligatory bottles of Ensure and Carnation Instant Breakfast.
Our big excitement this week was a trip out to the Shriners
Orthopedic Hospital in Springfield -- a volunteer Shriner and his
wife drove us out in the back seat of their big Cadillac. While we
were out there, Zhou Lin had her right foot (the healthier one)
molded, and her first check socket made. (A check socket is the
clear plastic molded piece that conforms to a limb and then is
slipped inside a prosthesis.) Although the constant up-and-down
swelling of the foot made the fit not quite right, Zhou Lin was
excited to get the feel of her first check socket, which she said was
much more comfortable than she expected. We also had a chance to
meet some other amputees, including a 3-year-old boy from China with
malformed feet who was about to have a similar bilateral amputation
to Zhou Lin's, and a number of American teenagers who have far less
of their legs than Zhou Lin does, but who are walking around
marvelously. Zhou Lin also got a full tour of the hospital in
Springfield and got to meet some staff, including her new
occupational therapist who plans to come up with some adaptive ways
to get Zhou Lin cooking in the kitchen again. (Hallelujah! Not only
will it help her become more independent again back at home, but she
can start cooking some of her own food here, which should help
significantly with her diet. She can hopefully teach me some things
about Sichuanese cooking, which I'm really looking forward to.)
By the time we headed back to Boston from Springfield, Zhou Lin was
pretty exhausted, as she often is after a full day of
activities. She came back happy, though, with a bunch of stickers,
stories, and two new stuffed animals -- a teddy bear that a nurse
told her could remind her of her baby brother back home, and a little
lion from her prosthetist, Brock, with wild orange hair coming every
which direction out of his head, just like Brock's.
Zhou Lin stayed
up late last night making a birthday card with bright glitter paints
for Brock, who has been telling Zhou Lin that he wants the first
dance with her as soon as she is walking again. Whenever he and the
Chief of Staff at Springfield fight over who gets the honor of her
first dance, Zhou Lin just giggles and giggles.
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